Brady’s Story

 

Brady O’Connell was born March 13th 2009 and he immediately brought us tremendous joy and excitement!  Our world dramatically changed the following morning when the neonatal doctor visited us to say they recommended transporting Brady to a level 3 Neonatal Intensive Care Unit because of some swelling in his belly.  He was diagnosed with malrotation of the bowel within 12 hours of birth and we had agreed to a surgical procedure to correct the problem within 15 hours of his birth.

Brady was born Friday night and went into surgery at 8:00 Sunday morning for a routine procedure that would have him feeling better soon.  However, a couple of doctors emerged a few hours later with the news that his intestines were so severely blocked with meconium ileus the surgeon was convinced Brady had Cystic Fibrosis.  From that point on, we were determined to focus on being strong for Brady so he could have a speedy recovery from surgery and begin the fight against CF.  Brady came out of surgery with an ostomy bag and a scar from rib cage to rib cage, which would have to be used again when his bowels were cleared and healed from the extensive surgery so they could put his intestines back together. He came through like a champ and taught us what it’s like to persevere and fight for your life to get the job done!  I don’t see anything or anyone standing in his way to find a cure for CF.

The CF Foundation was there for our family from the day Brady was born and they continue to provide the support and resources necessary for us to appropriately manage the disease.   Brady meets monthly with a team of doctors to monitor his lung function, diet and nutrition as well as his overall health.  He is currently participating in a clinical trial for a nebulizer treatment that can help improve lung function for kids and prolong the time it takes for CF to damage the lungs. Brady has to take several enzyme supplements before each feeding, chest physical therapy twice daily and nebulizer treatments twice a day.

Team O’Connell has been established to raise money for the Cystic Fibrosis Foundation.  We are determined to beat CF and through your generous donation, more money and resources can be spent to make CF stand for Cure Found.

Advertisements

7 Responses to “Brady’s Story”

  1. Jane Berkley April 27, 2010 at 10:39 am #

    What a fighter Brady is and so beautiful! Our prayers are with you and your family (and Emmets) for a cure to be found soon. I have heard about your faimiles from our son and daughter-in-law -Ryan and Colleen Kroll Berkley.
    We will keep you in our prayers- good luck with the fundraising.
    Jane

  2. Kolleen May 24, 2010 at 7:16 am #

    Wow! What a great video and information. I am humbled by the turnout for the walk and the family support. Thank you for embracing all of us and showing us what we need to do to continue to fight for a cure! Love to all of you!
    Kolleen

  3. Tara May 24, 2010 at 1:36 pm #

    Love the video Matt and Kellene! So glad you had a good turnout this past weekend and raised so much money for CF! We’re always behind you!!
    PS…Brady is such a cute little guy!
    Love, The Hausmanns

  4. Heather May 25, 2010 at 10:58 am #

    Thanks so much for putting this together. It’s great to be educated on the effects this disease has.
    All I can say is how impressed I am with the strength and courage you both have and how amazing you two are as parents. Brady is one lucky guy! And such a cutie. We love you guys and will continue to support you in any way possible.
    Love,
    Heather and Brian Serio

  5. Missy Blaha March 10, 2011 at 11:36 am #

    Matt and Kellene:

    I just saw your video after receiving a forward from my niece Kate Kinsella.

    You are both phenomenal parents. It is clear you are devoted to your beautiful son and I believe you will make the difference with such determination.

    Brady is so beautiful and one can see the strength in his eyes.

    You are all in our family prayers each day. We would be happy to help your cause anyway possible.

    God Bless.

    Missy and Rob Blaha and family.

  6. Michelle Jenson May 8, 2011 at 6:34 pm #

    I just watched your video, I had no idea! What a beautiful and strong little man! I would love to set up a fundraiser here in Phoenix. We will pray for Brady and for both of you. How great it is that you are both so strong! It is inspiring to watch! Go Team O’Connell!

    Jerrod and Michelle Jenson

  7. Patricia Tabor May 18, 2011 at 9:17 pm #

    Im excited for the walk this saturday! my mom and I are getting up bright and early and driving to chicago! brady is SOOOOO cute, the story made me cry. :(. GO TEAM O’CONNEL!!!!!!!!!

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

%d bloggers like this: